Officially founded on 24 July 2024, Wilson Association Poland is an organisation dedicated to improving the living conditions of people with Wilson's disease in Poland. Registered under the details KRS 0001117806, NIP 7991983259, and REGON 529212273, the association has 22 members, including both patients and parents of children affected by this rare disease. 

At the head of the association is Anna Anioł, president, supported by Agnieszka Miodek, vice-president. For all correspondence, you can reach them at choroba.wilsona@gmail.com or by telephone on +48 888 500 660. The association is registered at the personal address of one of the board members, located at 209/34 Tadeusza Kosciuszki, 26-500 Szydlowiec, Poland.
 

The Wilson Association Poland has set itself several ambitious objectives to raise awareness and improve the management of Wilson's disease:

• Organising Conferences: Setting up annual conferences bringing together experts, doctors, scientists and members of the association to exchange experience and knowledge.
• International exchanges: Invite international experts to Poland to share experiences and advances in the treatment of the disease.
  Promotion of Research: To highlight the number of patients and the need for research to understand individual differences and develop appropriate treatments.
• Access to Medicines: Lobby for access to a range of drug therapies in Poland, working with manufacturers and the Ministry of Health to ensure that treatments are reimbursed.
• Raising awareness through the media: Creating a short video to raise public awareness of the disease, with the ambition of producing a documentary in collaboration with television channels.
• Creation of a National Programme: In collaboration with the Ministry of Health, develop a programme for Wilson's disease as part of the national plan for rare diseases, including a network of treatment centres in Poland with standardised standards of care.
• Patient Integration: Promoting the integration and mobilisation of patients in Poland so that they become active players in their own health.
   

The Wilson Association Poland is committed to working tirelessly to improve the quality of life of people with Wilson's disease through collaboration, innovation and community engagement.

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