Representatives of patient organisations met for the second time in Aarhus.
The aim of the meeting was to share experiences and organise an international coalition to better coordinate the organisations' efforts.

PAO agreed that:
1. The next meeting will be organized by Spain (agenda) and US (Ronda, Zoom call). Will send a pool for decision of a specific date and time.
2. Others has suggested an annual World Wilson Day (6. December). This could be the short-term goal for a collaboration. The next meeting should be a planning meeting.
3. 1-3 meetings a year. The participants at one meeting decide when and who organizes the next meeting. Possibility for bilateral dialogues in smaller working groups if relevant.
4. Compiling a list of contact information’s. 
5. A rotating principle is attractive to share resources and create co-ownership.
6. There should be one-point of contact for each association to avoid a “tsunami of e-mails”
7. Group photo can be shared on social media in relation to this international Wilson collaboration.

Physical attendance:
• Wiebke Papenthin (Chair of the German Patient Association,
ERN representative)
• Valerie Wheater (Hon. Secretary WDSG-UK )
• Claire Stapleton (Committee member WDSG-UK)
• Rhonda Rowland (Vice President of WDA/USA)
• Aida Regi Cosculluela (Secretary of AEFE, Spain, ERN
representative)
• Enrique D. M. Miguel (Treasurer of AEFE, Spain)
• Faustino Giménez Felices (President of AEFE de Wilson,
Spain)
• Alberto Olimpio Garcia Jimenez (accompanies Aida)
• Marcos Villalaín Soto (Member of AEFE, Spain)
• Rocío Mellado Boix (Member of AEFE, Spain)
• Anna Aniol, Poland (+ daughter)
• Astrid Laursen (Chair of the Danish Patient Association)
• Susanne Balslev Nielsen (Vice chair of the Danish Patient
Association
• Brian Laursen (Member of the Danish Patient Association)
• Lisbet Ottesen (Member of the Danish Patient Association)

Virtual participation
• Gergana Delgyanska, Bulgarien g.delgyanska@gmail.com
• Oleksandr Volovets organizationwilsons@gmail.com
• Agnes Joshi,Schweiz info@morbus-wilson.ch

Absent:
• Caroline Roatta (President of APB Wilson, France)
• Milan Fudja, Czech Republic milan.fujda@gmail.com
• Anne Vasholmen, Norge annevasholmen@gmail.com
• Salvatore Dilorenzo, Italien info@malattiadiwilson.it
• Valentina Giuffre, Italien giuffre.valentina.21@gmail.com